For my book, KLS was the fish that got away. I began research on KLS in connection with idiopathic hypersomnia, but later decided to cut a chapter on KLS to limit word count. My book mainly compares IH to narcolepsy, which has an extensive history and better-understood biology.
KLS made things more complicated, because its peculiarities point toward other disorders, such as bipolar disorder, migraine headache and autoimmune encephalitis. I still think that comparing IH with KLS yields some insights, about both the disorders and the communities that have grown around them. Hence, this post.